All posts by Ruth Keogh

What would people with CF aged 16+ like to learn about their life expectancy and other outcomes? Results from an online survey

I am very pleased to share the results from this recent online survey and thank all those who responded to it.

An information sheet summarising the results can be seen here:

CF Questionnaire 2016: Results information sheet

More detailed results can be seen here:

CF Questionnaire 2016: Detailed results…

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“Salty Lives: Unravelling Healthcare Through the Lens of Living with Cystic Fibrosis” by Ute Schauberger

Ute Schauberger has done this fantastic project as part of a Master of Design Innovation and Citizenship at Glasgow School of Art:

https://www.yumpu.com/s/C2npWio9ve6zZmtw

 

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Challenging topics: statistics and life expectancy

Many thanks to all who have responded to my online survey so far: https://lshtm.onlinesurveys.ac.uk/cf_questionnaire_2016

You can find out more about this work and how I am using the UK CF Registry data from my Q&A news article at the Cystic Fibrosis Trust website…

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Link to online questionnaire: opening 4th July 2016

Please check out the “Online survey to gain understanding of what people with cystic fibrosis aged 16+ would like to learn about their life expectancy and other outcomes” which will be open for 2 weeks starting Monday 4th July.

You can access the survey at this link:

https://lshtm.onlinesurveys…

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Online survey opening 4th July 2016

“Online survey to gain understanding of what people with cystic fibrosis aged 16+ would like to learn about their life expectancy and other outcomes”

This survey will be active for two weeks from 4th July 2016 to 17th July 2016.

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